Affecting roughly 72 million Americans firsthand, common symptoms include memory loss; struggling to plan, complete tasks, or solve problems; feeling confused; experiencing new problems with speaking and writing; misplacing items; making poor judgment calls; social withdrawal; and more.
While those symptoms are ones we often hear about, they aren’t the only ones. There’s a symptom that many caregivers aren’t aware of and think is a result of “bad” caregiving: agitation.
“It’s critical to first appreciate that agitation is a symptom of brain changes caused by Alzheimer’s disease, not poor caregiving,” said Dr. Richard Stefanacci, the medical director of Inspira LIFE, a senior living program.
“The brain damage from Alzheimer’s makes people prone to agitation regardless of how loving caregivers are,” said Stefanacci, who also specializes in older populations and Alzheimer’s.
According to information the Alliance of Aging Research sent to HuffPost, “agitation” in this sense can present itself in a variety of ways: pacing, trying to leave, angry outbursts, profanity, hitting, mood swings, throwing items and more. Caregivers may blame themselves, AAR continued, thinking it’s a result of their burnout, introducing a new routine or not being patient enough.
Dr. Nikhil Palekar, the director of the Stony Brook Center of Excellence for Alzheimer’s Disease at Stony Brook Medicine, said there’s a stigma when it comes to this specific symptom.
“Caregivers often feel they might be doing something wrong, which is causing their loved one with Alzheimer’s to react in an uncooperative, hostile or agitated manner, without realizing that agitation in Alzheimer’s is very common, with rates ranging from 56% in early stages to 68% in the moderate-severe stage of the disease,” he said.
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