People With Super Rare Disorders And Medical Conditions Are Sharing What It Took To Get Diagnosed
January 27, 2025
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“In 2017, I started having extreme burning pain in my hands and feet — they would turn bright red and swell. The flare-ups were intermittent and triggered by heat.”
“In addition to being painful, it was very noticeable by others. When I went to doctors, they told me it wasn’t anything to worry about. Over the next two years, the symptoms got worse, and I started having…